You are not alone on this journey. There are many organizations and agencies that can guide you on your journey of Vascular Birthmarks!
The Vascular Birthmarks Foundation (VBF)
Children’s Hospital of Philadelphia Comprehensive Vascular Anomalies Program (CVAP)
https://www.chop.edu/centers-programs/vascular-anomalies-program
Klippel-Trenaunay Syndrome Support Group
National Organization for Rare Diseases (NORD)
More Than A Birthmark YouTube Channel - https://www.youtube.com/channel/UC042FNpklg7RX_F1jJnDBKA
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